Frequently Asked Questions

  • Who are Deafblind?

DeafBlind simply means a person has self identified themselves as having both a vision and hearing loss substantial enough to make everyday activities challenging.

  • Are the majority of individuals who are DeafBlind totally blind and totally deaf?

No, a very small percentage of individuals are actually totally deaf and blind. Most see or hear to some degree.

  • If I see a DeafBlind person, should I try to help?

Treat DeafBlind just like you’d treat anyone else. If you want to help, just ask them if they want help. They will let you know. Please don’t take offense if they say no though. Sometimes it is less confusing if the DeafBlind does whatever it is on their own rather than trying to explain to another person how to help.

  • What do we mean by the “DeafBlind” community?

The DeafBlind community includes:

  • DeafBlind individuals

  • Other professionals involved with DeafBlindness (interpreters, etc.)

  • Family members of DeafBlind people

  • Many other friends

  • What are the most common causes of DeafBlind?

Usher and CHARGE Syndromes. Usher is a combination of Retinitis pigmentosa and hearing loss. CHARGE is a combination of multiple disabilities ranging from vision, hearing, kidneys, heart and nasal.

  • Can DeafBlind live alone?

Yes. Many DeafBlind live normal active lives just like anyone else. With the proper training, alternative methods, and support, DeafBlind can do just about anything they want to do.